The Treatments Continue...

Yesterday (Friday, Dec 14) Henry received his second infusion of the new protocol, this time with the addition of the second drug, Avastin. It was an all-day affair: Check in at Memorial in Savannah at 10AM, port access, an hour of pre-hydration, vital sign check, an hour-and-a-half infusion of Avastin, an hour-and-a-half infusion of CPTS-11, and a planned hour of post hydration (which was waived if he promised to drink a big glass of Gatorade), and port de-access. Home by 5:30PM.

So far, Henry has not suffered much from side effects, which can include diarrhea and heavy drop in blood pressure, along with the ubiquitous nausea, vomiting, fatigue and hair loss. He actually felt pretty sick towards the end of the second drug infusion, but (with the help of some Zofran) it didn't last long and he had a good evening.

This treatment will continue... well, indefinitely. We'll have infusions every two weeks and on off-weeks have blood tests (which we can get from our local pediatrician) to check his counts and see if we need the home injections. We'll schedule an MRI after the first of the year.